The sentence that stayed with me throughout Deborah’s final hours—“I brought my daughter into the world, and I took her out of it”—felt like both a truth and a burden, something no parent ever imagines themselves saying. Sitting beside her bed, my hand wrapped around hers, time seemed to soften around us, stretching into something muted and strange. There is no guidance for how to accompany your child toward the end of her life, no script for how to breathe beside someone whose breaths grow slower, quieter, more final. Parents aren’t meant to outlive their children. They aren’t meant to watch their bodies diminish inside hospital sheets or whisper reassurances they prayed they would never need to say. When she was born, I had held her with a strength I didn’t know I possessed; on this last day, I held her with that same strength, but now it was holding her toward peace rather than into life. Her hand felt smaller than I remembered—those hands that tied shoelaces, typed thousands of words of encouragement, clutched her children tightly, and fought for every inch of survival. Now they rested in mine, warm only because I surrounded them. She hovered in that strange place between here and somewhere else, where each breath is fragile and time seems to fold in on itself. A complicated mixture of grief and relief settled over me. Grief, because losing her felt like losing a part of my body and spirit. Relief, because her suffering had become unbearable to watch. For five and a half years she had moved through cycles of optimism and despair—surgeries, chemotherapy, experimental treatments, hopeful announcements, crushing news. Five and a half years in which death circled her constantly, waiting for a moment to close in. And yet through all of that, she resisted with a courage that stunned everyone who knew her.

Her fight was never abstract; it had a face, a purpose, a heartbeat. She fought for Hugo and Eloise, who were just sixteen and fourteen when they lost her—the very ages when children still need their mother most. She fought for her husband, who stood beside her through every appointment and long night. She fought for friends. She fought for strangers who reached out to her online in fear and confusion. And though she rarely acknowledged it, she also fought for herself, for the life she still loved, for the goals she still held, for the memories she was determined to create. She waged this battle even as stage 4 bowel cancer stripped away comfort, energy, and normalcy. Her humor became a weapon, her honesty a shield. She shared her experience with raw transparency, never hiding the messy or humiliating parts. In doing so, she made countless people feel less alone. She sparked conversations families had avoided. She made people book GP appointments they had been postponing. She saved lives. In transforming her private struggle into a public mission, she became a guiding light for others moving through darkness. And amid all that advocacy, she remained herself—Deborah the mother, Deborah the friend, Deborah the woman who wore bright dresses even when she could barely stand. She laughed loudly at family meals, she held her children close, she squeezed life out of days that were shrinking. But the decline came nevertheless. First slowly: a treatment that didn’t work, a tumor that didn’t shrink, a pain that returned too quickly. More appointments, more waiting rooms thick with unspoken fear. Then everything accelerated. Her strength ebbed, her body thinned, her skin grew pale. Yet the spark in her eyes, stubborn as ever, refused to disappear entirely.

When hospice was mentioned, Deborah did not break down. She simply absorbed it quietly and looked at me with a calm resolve. “Mum, I don’t want them to be scared. Promise me we’ll keep things light.” Even in the face of death, she wanted warmth surrounding her family. She wanted laughter drifting through the room where she would take her final breaths. She wanted her children to step into the space without dread. She wanted to be remembered smiling, as she had lived. That was who she was: someone who brought sunlight into the bleakest corners, determined to soften the sharp edges for those around her. The last days, surprisingly, carried a gentleness. She slept more often, spoke more quietly. When awake, she held my hand with startling clarity, as if concentrating all her remaining strength into those brief interactions. She didn’t dwell on dying. She talked about Hugo and Eloise, about milestones she wished she could witness, about the love she wanted them to feel in every stage of their lives. She talked about resilience and hope, her voice faint but steady. Gradually, sleep pulled her away for longer stretches; her movements softened; her breaths deepened. Then came that final morning—a morning wrapped in an unbearable stillness, when the air itself felt delicate. I held her hand, remembering the feel of her newborn fingers decades earlier, and whispered, “It’s okay, sweetheart. You can rest now.” She exhaled softly, almost peacefully, a breath that felt like both a surrender and a release. And in that gentle sigh, she slipped free.

People ask how I manage now, and the truth is that grief has no clean lines. It is unpredictable, arriving in waves: some small enough to step over, others large enough to knock me down completely. But I keep moving because reminders of her surround me. I hear her laugh in Hugo’s jokes. I see her determination reflected in Eloise’s expressions. I sense her vibrancy in the ordinary rhythms of life—a cup of tea warming my hands, a shaft of sunlight through the window, a silly meme she would have sent to make me smile. I keep going because the children need stability, and she would have hated to see me collapse beneath sorrow. More than anything, I keep going because Deborah taught me how. She taught me that joy can be squeezed from even the darkest situations, that purpose can be carved from suffering, that one person’s voice can ripple outward in ways they never imagined. Her legacy is not just her blog or her activism. It lives in every person who caught their symptoms early because she urged them to pay attention. It lives in every story shared with gratitude. It lives in every act of advocacy she inspired. It lives, most of all, in love—a love that extends far beyond family boundaries, far beyond her own lifetime, continuing to move outward through those she affected.

Often, I return to the day she was born. I remember holding her tiny body, flushed and crying, thinking that it was the greatest moment of my life—the beginning of everything. Decades later, holding her hand as she left this world felt like another kind of profound privilege: the chance to accompany her from first breath to last, circling back to the tenderness where it all began. “I brought my daughter into the world,” I whispered, “and I took her out of it.” It wasn’t meant to be tragic. It was meant to be complete—a full circle of devotion from start to finish. Deborah lived vibrantly and purposefully. She died peacefully and courageously. And in the space between those two points, she poured everything she had into her family, her cause, and the countless people she helped without ever meeting them. I will spend the rest of my life honoring her work, protecting her children, amplifying her message, reminding others to trust their bodies, to fight for themselves, and to live boldly even when life is cruel. Deborah taught me that the value of a life isn’t measured in years but in impact, in bravery, in the people you uplift, in the love you spread. And by those measures, her life—though heartbreakingly short—was immeasurably vast.